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L’11° edizione della Giornata delle Malattie Rare sarà il prossimo 28 febbraio 2018. Prendi parte anche tu alla campagna social di “pitturarti il viso” per aumentare la consapevolezza sulle malattie rare e mostrare il tuo sostegno attivo per la comunità delle malattie rare! Show Your Rare, Show Your Care!
Prendi parte anche tu alla campagna #ShowYourRare durante il mese di febbraio 2018!
La Giornata delle Malattie Rare è per tutti: pubblico generico, malati rari, famigliari, amici, parenti, professionisti, ricercatori, aziende… Non occorre essere un paziente per prendere parte alla Giornata e all’iniziativa.
Come? È semplice… Pubblica una foto o un tuo selfie sul nostro canale Instagram, Facebook o Twitter con il tuo volto pitturato e scrivi gli hashtags #ShowYouRare, #MyRare, #RareDiseaseDay! Condividi un tuo selfie da solo, con amici, famigliari o colleghi!
Le malattie rare colpiscono circa 300 milioni di personale in tutto il mondo e ci sono oltre 6.000 malattie rare diverse. Tutto considerato non è così raro.
Sostieni anche tu la comunità di malati rari, “mostrando il tuo raro”. Il tuo aiuto è fondamentale per aumentare la consapevolezza ed aumentare il sostegno alla ricerca.
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