Risorse e Documenti Utili

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Alcuni sono già attivi, altri stanno nascendo. Sono i gruppi regionali Whatsapp di As.It.O.I, community di persone unite dall’interesse per l’O.I. e accomunate dal fatto di vivere in una specifica regione italiana.
Problemi simili, soluzioni possibili dall’unione, che, mai come in questo caso, può fare la forza della nostra fragilità.
Se cercate risposte, avete bisogno informazioni sui servizi della vostra regione, o volete mettere a disposizione esperienze per aiutare altre persone che vivono vicino a voi e condividono le problematiche dell’OI, da oggi potrete aderire ai gruppi Whatsapp dedicati al vostro territorio.
Un modo diretto per condividere storie e idee, scambiare opinioni, scoprirsi meno soli e meno rari di come qualche volta appare a chi si affaccia per la prima volta nel mondo delle malattie genetiche.
I gruppi sono moderati dai referenti regionali e dai volontari più attivi della nostra associazione e saranno molto utili anche per definire l’agenda di As.It.O.I., individuare le priorità e le emergenze e raccogliere informazioni su centri e medici per realizzare una rete territoriale sempre più presente e informata.
Cosa aspettate? Cercate qui la vostra regione e iscrivetevi al gruppo!  E contribuite a far nascere i gruppi che ancora sono vacanti. La nostra forza nasce dalla vostra voglia di condividere le vostre esperienze.

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